FAQs
What are biosamples?
Biosamples are biological materials collected for use in research. They can include blood, saliva, urine, tissue, hair, and skin.
What types of biospecimens are available in the DSA Biobank?
DSA Biobank processes biosamples and extracts things like DNA, RNA, PBMCs and stores them. The DSA Biobank also stores samples in their unprocessed format, such as whole blood, tissue, saliva, etc
Our team will work with collaborators to secure the specimen speciļ¬c to your research needs.
We are currently supporting several funded studies with plasma, serum, DNA, RNA, saliva, and tears.
How do you collect your biosamples?
Participants can visit one of our participating locations in person or contact us to schedule a home visit.
Who can participate in your study?
Anyone with Down syndrome and their parent or sibling is eligible to participate.
What age groups do you collect from?
We collect from ages 3 and up if you are able to visit our on-site location. However, if you are 16 years or older, we can schedule a home visit for you to participate.
Do you have any health information on the research participants?
Yes, we ask each participant to complete a self reported health questionnaire.
What are the storage conditions and quality of the biospecimens?
Our biospecimens are collected and processed following rigorous standards that safeguard quality.
How do you protect the identity of each research participant?
Each participant is given a globally unique identifier (GUID). This is a pseudo-random number used to identify a user account. It links participant survey responses and medical information with the biospecimens collected. We do not retain or share any identifying information in our system with researchers.
What is the process for gaining consent for biosample collection?
Each participant broadly consents to all samples, and assent is obtained when applicable. All our samples are stored and obtained following extensive informed consent procedures.
Are there ethical considerations involved in collecting biosamples?
Yes, ethical considerations are paramount in biosample collection. We obtain informed consent from donors, ensure confidentiality and privacy, and adhere to ethical guidelines and regulations governing research.
Will the DSA Biobank work with my own research protocol needs?
Absolutely. We believe collaboration is critical to advancing our understanding of Down syndrome in a meaningful way. Fill out our sample request form to share your research with us, and we will get back to you with our services. Also, please check our website to find out more about how we can support your sample collection needs, healthcare questions, and unique processing methods.
Is there any associated cost or fees to access the DSA Biobank specimens?
No, there is no cost.
You must complete the required information on our biobank request form and submit it to be reviewed for approval before getting access to our biobank specimens.
How do I learn more about the DSA Biobank?
Complete our Biobank Request Form to request biobank specimens in an upcoming study.
Complete our Biobank Request Form to request biobank specimens in an upcoming study.