Nearly all adults with Down syndrome will develop indications of Alzheimer’s Disease (AD) by as early as 40 years old, including amyloid plaque on the brain. Lecanemab is a drug designed to target and remove amyloid plaque, and recently approved by the U.S. Food and Drug Administration. However, people with Down...
Federal proposal to seize patents via ‘march-in’ rights will harm innovation: Op-Ed by Lito Ramirez
DUBLIN, Ohio -- Approximately one in every 700 babies in the United States is born with Down syndrome. Funding research is crucial to investigating conditions that affect individuals with Down syndrome and developing interventions that significantly improve their quality of life. As a father to a son living with Down syndrome, and leader...
DownSyndrome Achieves Awards Scientific Research Travel Grants
DUBLIN, OH - DownSyndrome Achieves (DSA) is pleased to announce it has awarded two $2,000 grants for travel and related expenses to the 2024 T21RS biennial International Conference, which will be held in Rome, Italy, this June.The travel grants reflect DSA’s commitment to enabling and cultivating more early-career scientists to...
Biobank Poised to Transform Down syndrome Research
Biospecimens are stored in special freezers at minus 80 degrees Celsius to ensure their preservation and usefulness for many years. (Cincinnati Children's) A first-of-its-kind effort is underway to collect biological samples from people with Down syndrome in a bid to improve care and outcomes for those with chromosomal disorder. Cincinnati...
Biobank Dedicated to Down Syndrome Bright Spot in 2020
From the Akron Beacon Journal "After years of preparation, this past January DSA Biobank opened for business and began accepting applications from researchers… "Soon after DSA Biobank opened, they received their first application for biospecimens. Dr. Dimitrious Karamichos at the University of North Texas Health Science Center is studying an...
A note from our President on the COVID-19 Pandemic
While the COVID-19 pandemic continues to touch our lives on a daily basis, our mission at DownSyndrome Achieves has remained constant: to help facilitate the discovery of new treatments and therapies that ultimately improve the health and well-being of people with Down syndrome and others. This mission is made all...
COVID-19 and Down Syndrome
For up-to-date information about COVID-19, as it relates to people with Down syndrome, check out LuMind IDSC Foundation's excellent resource page here.
Statement by DownSyndrome Achieves CEO, Lito Ramirez, on the Launch of DSA Biobank Operations at Lee Specialty Clinic
In December 2015, DownSyndrome Achieves launched an effort to develop a centralized and dedicated biobank for Down syndrome research that would serve as an open resource seeking to conduct studies that improve the health and well-being of individuals with Down syndrome and others. That's why I'm so pleased to announce...